Please help us in spreading awareness about turner syndrome and helping girls like Eleanor. Eleanor was diagnosed at 17 weeks gestation via amniocentesis. She put up a fight and beat the odds. She was born 3 weeks early and as healthy as she can be, but not all girls are this lucky, and for them we continue our fight for awareness. We were told at 12 weeks that something was wrong with our baby and began doing testing and seeing doctors to figure it out. At 17 week it was confirmed that Eleanor had TS. We were told that the odds of her surviving were very slim but not out of the question. We decided to continue with the pregnancy and monitored Eleanor very closely. We saw doctors twice a week to check her heart, stress level, growth, and keep an eye on her umbilical cord that was detaching from the placenta. She also had to help fight a fibroid that was on my uterus that was trying to take blood from her. She truly is our miracle baby.

This past year with Eleanor has been a wild ride to say the least. Eleanor has met all her milestones and continues to thrive and amazes us every day. She is wild, full of life and keeps us on our toes. She gets into everything and talks all day long. Her favorite things to do are play with her all her babies, listen to music, jump off everything, ride bikes and dig in the sand. In January Eleanor moved from Grand Rapids down to Paw Paw to be closer to family and friends and she loves her knew house and big yard. She started a new daycare and loves going there and getting her hair done and playing on the playground.

As far as her Turners Syndrome goes she has not been to her endocrinologist this year but is going to a new one in August. She had her kidneys scanned for dialation issues and got cleared and her kidneys now look perfect. She also had her heart scanned and everything looked great and got cleared for 4 years. She is still growing and on the growth chart and we have not heard any word of shots as of now. She has been attending occupational therapy for her eating. She does not like to try new food and eats very little, but she is getting better. We are very greatful for her health and how well she is thrieving. 

Our family participated in this walk the last 2 years year and met so many amazing girls and made so many memories. We want to help spread awareness so that more people are aware that girls diagnosed with TS do have a chance to survive and can see amazing these little girls. Had we listened to the first doctor we saw we would not have our beautiful Eleanor and our lives definitely would be less eventful and a lot quieter.  Please consider making a donation to help spread awareness about Turner syndrome or come out and walk with these amazing girls.