Turner Syndrome is rare chromosomal disorder. Only about 1% of babies with TS survive to live birth. Claire is one of those 1%. Diagnosed at 4 years old she has been an exceptional super hero packed into a tiny package. Her superpower is her memory - she'll never forget anything she hears. Her caring nature leaves an imprint on everyone she meets. She takes blood draws like a champ, advocates for her health like someone 30 years older, is confident to know what makes her be the best little human she can be, and is proud to tell everyone about Turner Syndrome.
The Minnesota Chapter of the Turner Syndrome Society of the United States mission is create awareness, promote research and provide support for all families touched by Turner Syndrome. Specifically, we work to promote awareness, create friendships, and provide financial assistance to help defray medical expenses, hearing aid costs, and offer scholarships.
Our annual Chasing Butterflies Walk for Turner Syndrome is on Saturday September 7th at French Regional Park in Plymouth. It is our largest fundraiser of the year. I hope that you will thoughtfully consider a contribution to our walk. All donations will help the Minnesota Chapter promote awareness, research, and provide support.
Supporters | |||
Name | Date | Amount | Comments |
Brent Svor | 09/06/2019 | $100.00 | Jessica Doody | 09/04/2019 | $30.00 | Jean A Zemke | 09/04/2019 | $100.00 | Our Super Hero | Joanne Rzeppa | 08/31/2019 | $50.00 | Clare Daman | 08/31/2019 | $25.00 | Go Clare! | Anonymous Friend | 08/20/2019 | $160.00 | Chris Zemke | 08/20/2019 | $50.00 | We love you Claire! | Jill Schlofer | 08/20/2019 | $25.00 | Jessica Koster | 08/19/2019 | $25.00 | Colleen Daman | 06/16/2019 | $65.00 |
Total | $630.00 |