http://Turnersyndrome.org   Nikki was diagnosed with Turner Syndrome when she was 4.  We were very fortunate to learn of her condition when we did because it helped the doctors to find a very large tumor lodged in her pelvic bone.  It was removed and she is a happy and healthy 8 yr old.  We have found it a great blessing to know about Turner Syndrome and would love to raise some money to help with awaremess and research.  We would love it if any of our Portland area friends and family wanted to join us for the walk. If you have a few extra dollars and would like to donate that would be great too.